Gilles is in the air

Gilles de la Tourette syndrome in pregnancy

Our guest for the 7th episode of "Gilles is in the air" is Dr Anna Castrioto from the Grenoble Alps University Hospital in France.
View her research works. 
We talk about hormonal changes and tics, contraception methods in association with anti-tic treatments, tic changes during pregnancy and post-partum, treatments that are not recommended during pregnancy and the ones that are harmless.We address the same questions in relation to breast-feeding, enquire about concerns for DBS in women with TS during pregnancy and the difficulties they encounter in coping with TS in their role as mothers.

Symptom severity and health impacts of functional tic-like behaviours in youth

For our 6th episode, Christelle Nilles interviews Lindsay Berg, a special guest, who is very knowledgeable about today's particularly important topic.
Lindsay Berg is a Master’s student at the University of Calgary in the Clinical Psychology Program.
Her current research focuses on care equity and on examining barriers and facilitators of medical and mental health care for trans and gender diverse youth.
She previously worked in the Movement disorders clinic investigating functional tic-like behaviours.
 
(We apologise for the suboptimal audio quality at certain parts.)

Tourette syndrome at school; challenges and perspectives

For our 5th episode of "Gilles is in the air", we reach out to parents and teachers to hear about the challenges that they and their children are encountering within the school environment, and the solutions and mechanisms that help them in various situations.
Christelle Nilles interviews Lucy Toghill, Education Manager at Tourettes Action UK, Jose Rosa and Phillip Schöne from Spain and New Zealand respectively and currently based in Valencia, and Christina Papakaliati, founder of the newly formed, Tourette Greece. 
We are very grateful for their time and willingness to share their stories!
Useful links by Tourettes Action UK: 
Education link
Information for Education Professionals link
You may also view Christina Papakaliatis' video recording included in the "TS-underrepresented zones" session at our conference in Varese in June 2024.

Early-Life and Family Risk Factors for Tic Disorder Persistence into Adulthood

For our 4th episode of "Gilles is in the air", Christelle Nilles talks to Professor David Mataix-Cols who works at the Department of Clinical Neuroscience at the Karolinska Institutet in Stockholm, as a Professor of Child and Adolescent Psychiatric Science. 
We are delighted to hear about his very important article “Early-Life and Family Risk Factors for Tic Disorder Persistence into Adulthood”, published in Movement Disorders in 2023. 

Accepting Tourette; before and after the diagnosis

Inspiring, honest and enlightening stories
For our 3rd "Gilles is in the air episode", we welcome E.G. Gidner (USA), Devyn LaCroix (USA) and Paul Stevenson (UK).
We discuss amongst other things about the chronology of their first tics, if/how bothersome they were, how they were perceived by their close ones, the diagnosis –the announcement and its effect, the term "Tourette", available resources and the current landscape; acceptance and understanding.
To find out more about our guests:
E.G Gidner, X, LinkedIn, Facebook
Devyn LaCroix
Paul Stevenson, X, LinkedIn, Facebook
E.G., Devyn, Paul, thank you for sharing your stories with us! 🙏